Kusnanto and Sari, N.P.W.P. and Harmayetty, H. and Ferry Efendi and Gunawan, J. (2018) Self-care model application to improve self-care agency, self-care activities, and quality of life in patients with systemic lupus erythematosus. Journal of Taibah University Medical Sciences, 13 (5). pp. 472-478.

Abstract

Objectives: This study aimed to examine the effect of the application of a self-care model to improve self-care agency (SCA), self-care operation, and quality of life (QoL) in patients with systemic lupus erythematosus (SLE). Methods: This study employed a pre-experimental design with one pretest-posttest group. Thirty-six respondents were selected through total sampling. The experimental group was provided self-care management training, followed by four weekly home visits. Self-care agency was measured with the self-care agency scale, the other variables through self-rated abilities on the health practices scale and Lupus quality inventory. Data were analysed using paired t-tests with α < 0.05. Results: SLE was common in actively working married women of childbearing age, most of whom had had SLE for 1�2 years (33.3), with arthritis being the most common symptom (reported by 61.1). The major flare trigger factor was physical stress (66.7), resulting in fatigue. On average, the self-care model was able to improve SCA by 19.93, self-care operation by 17.53, and QoL by 12.19. It was significantly effective in enhancing SCA, self-care operation, and QoL in patients with SLE (p < 0.001). Conclusions: The application of Orem's self-care model is effective in improving SCA, self-care, and QoL, and this study provides evidence of the benefits of its use in the nursing care of patients with SLE in a community setting. Health care providers should incorporate Orem's self-care model in nursing care to enhance SCA, self-care, and QoL in patients with SLE. © 2018 The Authors

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