Ernawati and Nursalam and Shrimarti Rukmini Devy and Siti Aminah and Ahmad Fathurohman and Tri Hartiti and Arief Yanto and Machmudah (2021) Prospecting sehat-kader project to decrease perceived stigma and improve quality of life people living with hiv/aids at kudus district, central java. International Journal of Pharmaceutical Research, 13 (1). pp. 280-285. ISSN 0975-2366

Abstract

Background: People living with HIV/AIDS (PLWHA) experience various difficulties in life. Society gives them a strong stigma that causes poor quality of life. Although they had been gotten support from cadre, however the cadres themselves encountered many obstacles during accompaniment. This study aimed to explore the prospect of comprehensive HIV/AIDS care with the electronic system (SEHAT-Kader) as a personal health record in information systems for PLWHA and their special needs plan based on Web to decrease perceived stigma and improve quality of life PLWHA. Method: A qualitative research method was used to gather experiences of managing stigma and health condition status PLWHA and how are perceptions and barriers regarding challenges to designing SEHAT- Kader application at Kudus district, Central Java. The study had been carried out during February 2019-April 2020. The sample comprised PLWHA, cadre members, and case manager. We conducted 2 focus groups with members (n=12). Data were thematically analyzed. Results: The study revealed that mayor problems of HIV/AIDS's cadre in Kudus district, Central Java are: the extent of coverage area and accompaniment ratio is disproportionate (1 cadre:45 PLWHA); fear direct contact and being HIV infected; the manual data record system, so often error and lost; Cadres needed an information system to monitor the health conditions of PLWHA. The “SEHAT-Kader” app is designed as a personal health record for PLHIV information systems and information technology-based special needs plans to reduce perceived stigma and improve the quality of life of PLWHA. Conclusion: The features of SEHAT-Kader application designed to support routine operational activities of user groups, namely cadre companion, PLWHA, and case manager as care coordination or administration personal.

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