Izzatul Fithriyah, - and Yunias Setiawati, - and Sasanti Yuniar, - (2020) Assessing Caregiver Burden and its Correlation to Quality of Life of Mother with Autism Spectrum Disorder in Surabaya Indonesia. In: Proceedings of the 2nd African International Conference on Industrial Engineering and Operations Management, Harare Zimbabwe. IEOM Society International, Zimbabwe, pp. 3367-3373. ISBN 978-1-7923-6123-4

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Abstract

Autism Spectrum Disorder (ASD) is a complex neurological disorder that affects brain function and occurs within the first three years of life and cause disorder in several areas of development including social interaction, communication and behavior. Mother, as primary caregiver is the most affected subject during nurturing. Mother’s quality of life is very important for mother’s wellbeing. The aim of this study is to determine the relationship between caregiver burden with quality of life of mothers with autistic child. This study is an analytic cross sectional design using consequtive sampling in psychiatric day care Dr.Soetomo General Hospital, Surabaya. Instrument using Caregiver Burden Assessment (CBA) and WHO Qol BREF to assess mother's quality of life. The sample for this study consisted of 24 mothers of children with autism spectrum disorders. Objective burden showed a significant negative correlation with physical, psychological, and social domains quality of life and did not correlate to environmental domain of quality of life. Subjective burden and total caregiver burden did not correlate to all domain of quality of life of mother with autism spectrum disorders children.

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